On the plus side, I'm back on daily estrogen and I am hopeful that those suckers will kick in soon to stabilize my terrible mood swings and brain fog. I have to say, it's helping already. The doctor also gave me his official approval to run my full marathon ON SUNDAY. IN TWO DAYS.
All of the sudden, I am freaking out. What was I thinking?!? 26.2 Miles?!? Really?!? Why did that sound like such a better idea two months ago?
I do have a plan. I will run for as far as possible on my training alone. But when I am out of steam, I will run on all of the rage and frustration and sadness that has been taking over my life lately. That should get me to the finish line.
Post-marathon, I plan to focus my attention on getting into the National Institutes of Health Study on Primary Ovarian Insufficiency (the new and more politically correct way to say Premature Ovarian Failure). It's in Bethesda, Maryland and it would include three days of extensive testing to try to figure out why my ovaries are bum at age 29. Today I sent a request for medical records and a referral letter to my RE and I sent in a ton of family history and screening info to the study itself. I think I'll easily qualify and I'm hoping to get in sometime this summer.
I am so sorry. This sucks. I am angry for you. Run your heart out on Sunday my dear! You deserve some time to vent.
ReplyDeleteI'm very interested to hear about the NIH study. I hope it brings answers and a plan for treatment.
I'm sorry that the stims don't work. ((hugs))
ReplyDeleteI have to say I like your running plan. You will get to the finish line there is no doubt about it.
Good luck with your application for the NIH study. Would love to read an update/details on that one.
Good luck for the marathon! you will storm it love! and really hope you get on the NIH study. :)
ReplyDeleteSo sorry about this news. I, too, have bum ovaries that failed to produce much of anything after 6 days of a very high injectable med protacol in April.
ReplyDeleteBest of luck in your marathon!
I'd love to hear how things turn out with the study, too. They really do need to get to the bottom of this diagnosis. I hope you get in, and get some answers.
How did the marathon go?! Well I really hope :) Happy ICLW!
ReplyDeleteInsufficiency sounds much nicer than "failure!" Good luck getting into the study.
ReplyDeleteHappy ICLW! So sorry this cycle was a bust, I hope you get a BFP soon! You are amazing to run a marathon, wow!
ReplyDeleteGood luck on with the marathon and the NIH app. I've heard great things about Dr. Nelson.
ReplyDeleteHi from ICLW: how was the marathon? So exciting that you got to run one. As a runner currently struggling with infertility, my usual routine is gone and I'm a converted yoga junky now. But I long for the day when the running returns. Hope you had a fabulous race. Hope you didn't run angry. Rather, run because you can and because so many others choose not to.
ReplyDeleteI also sent in all of my million tests and papers and family history to NIH! I heard that i have everything in and they are now scheduling out to October, so i should hear in September what dates I might be able to go. They take 2 people a week I guess. I hope we both get to do it!
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